Hi Michelle - I have been following your journey closely and it mirrors mine in so many ways. After doing some research - I was fairly recently diagnosed by my PCP and referred to vascular doctor - but my insurance company doesn't even have a lipedema topic on their website, so I know treatment will be an uphill battle. My father passed away in October unexpectedly so I have been traveling back and forth out-of-state dealing with his belongings and estate - it is grueling. And my lipedema seems to be getting worse (stress maybe?!)
Our stories are eerily similar. I truly believe that the emotional stress and grief exacerbates this disease. It's difficult, because life keep moving on regardless of how much we need a pause. I feel for you and hope you're doing okay and able to give yourself the self-care your body needs.
As for your insurance plan not having language that addresses Lipedema, I will start writing about this, because you can get around it. It takes a lot of knowledge and persistence, but that's why I started this newsletter in the first place. I feel terrible that I haven't been able to write about this process for the past couple of months, but I had to prioritize life. I'm now ready to continue to help other women with Lipedema.
Sorry you're going through this hell. My mother passed years back and going through all her stuff was super painful. And yes, my mom had tons of stuff, too. She was a pack rat.
Even so, it was *her* stuff. When my dad gave away things of hers that were valuable to me without asking me first, that just made it worse.
It's a terrible situation all around to lose a mother. I remember suffering from a lot of chronic pain in my body at the time. Every day, pain. It was hard. It made me irritable and my mind foggy.
Sure, it's different than what you're experiencing. What you're experiencing sounds worse.
Thank you so much Emme! Yes, the emotional stress is overwhelming. I am so sorry you had to go through that, especially having your mom's things given away without you being asked. That would make the grief so much worse. Death tests family dynamics. I've also been going through some negative family dynamics. But that's a different story.
Hi Michelle I would like to speak to you personally when you have some time. Please email me at Elleabrams58@gmail.com. thanks
Hi Michelle - I have been following your journey closely and it mirrors mine in so many ways. After doing some research - I was fairly recently diagnosed by my PCP and referred to vascular doctor - but my insurance company doesn't even have a lipedema topic on their website, so I know treatment will be an uphill battle. My father passed away in October unexpectedly so I have been traveling back and forth out-of-state dealing with his belongings and estate - it is grueling. And my lipedema seems to be getting worse (stress maybe?!)
Thank you for this message, Jen!
Our stories are eerily similar. I truly believe that the emotional stress and grief exacerbates this disease. It's difficult, because life keep moving on regardless of how much we need a pause. I feel for you and hope you're doing okay and able to give yourself the self-care your body needs.
As for your insurance plan not having language that addresses Lipedema, I will start writing about this, because you can get around it. It takes a lot of knowledge and persistence, but that's why I started this newsletter in the first place. I feel terrible that I haven't been able to write about this process for the past couple of months, but I had to prioritize life. I'm now ready to continue to help other women with Lipedema.
Sorry you're going through this hell. My mother passed years back and going through all her stuff was super painful. And yes, my mom had tons of stuff, too. She was a pack rat.
Even so, it was *her* stuff. When my dad gave away things of hers that were valuable to me without asking me first, that just made it worse.
It's a terrible situation all around to lose a mother. I remember suffering from a lot of chronic pain in my body at the time. Every day, pain. It was hard. It made me irritable and my mind foggy.
Sure, it's different than what you're experiencing. What you're experiencing sounds worse.
Hang in there. I'm glad you have family support.
Thank you so much Emme! Yes, the emotional stress is overwhelming. I am so sorry you had to go through that, especially having your mom's things given away without you being asked. That would make the grief so much worse. Death tests family dynamics. I've also been going through some negative family dynamics. But that's a different story.